Sohana is a happy, positive 10 year old, despite having a very severe genetic skin condition called Recessive Dystrophic Epidermolysis Bullosa (RDEB). She is missing a vital protein cement (collagen 7) in her skin, making her incredibly fragile. This leads to skin loss or blistering at the slightest knock or rub. The condition is incredibly cruel and Sohana's type is progressive, life-threatening and very painful. Both external and internal skin are affected, so eating is always painful and if she suffers an abrasion to surface of her eyes, she is rendered temporarily blind. She lives an exhaustive routine of having blisters lanced, being covered in bandages, hospital visits and constant pain. If you met Sohana, she would bounce up to you with a huge smile. You would hear about her plans for the future, hear her sing her favourite songs, describe her favourite book. She has a zest for life and a fierce determination to live life to the full, to find humour in its misfortunes and to wear optimism proudly on her chest. Behind her immensely brave happy smile however, lies a deep yearning to have even one day, one minute, one second, without pain. The Sohana Research Fund was set up by Sohana's parents in late 2010 and is working to raise funds on behalf of DEBRA, the UK registered Charity for Epidermolysis Bulllosa (EB) sufferers, with a focus on research into effective treatments and eventually a cure for this devastating condition.
To assist in the treatment and care of persons suffering from, or undergoing diagnosis for, breast cancer, testicular cancer, or persons in need of rehabilitation as a result of such illness by the provision of financial assistance, equipment, facilities, services and other support to such persons or their immediate families and carers.
It supports adult cancer patients and carers.It provides a safe, friendly environment in which people can meet others facing a similar challenge.Weekly meetings in Hexham, speakers, gentle yoga sessions, a library and free complementary therapies from qualified, insured therapists.
It helps fund research into this rare disorder,currently working with Addenbrookes Hospital. This disorder affects such a small number of individuals with no reason how or why.
We are a volunteer run charity. We support local oncology units, providing equipment and alternative therapies. We provide real hair wigs directly to patients. We are also committed to supporting cancer research and raising awareness of the disease. For more details see www.bosombudsofscotland.org
Friends of Thor was set up to raise funds for the & extras' which the Local Authority could not supply, often the very things that make such a diffence for the Service Users.
Imagine losing the ability to move and feel for the rest of your natural life. That is the reality for millions of individuals world-wide who have become victims of a paralysing spinal cord injury. Walkoncemore funds cutting edge research into a cure for this horrific condition. With your help they can weld the key to unlock paralysis.
Purpose and activities: To raise CADASIL awareness; to provide sufferers and their families with crucial support; to serve as an important interface between specialist neurological practitioners/researchers, GPs and sufferers; to research into therapeutic technologies and other treatments; and to co-ordinate with other charities representing various degenerative neurological conditions.
Jamie's Wish Trust helps all aged between 0-25 with life threatening illnesses, such like cancer. With granting them their wishes or to help them financially.
Working with partners locally, the charity is committed to significantly reducing avoidable blindness across West Africa, by developing a unique and sustainable eye centre which is dedicated to the provision of surgical skills training, continuing medical education and treatment of all eye disease.
The charity aims to further the education and awareness of Motor Neurons Disease in Christchurch, New Zealand.
Raising money for the UK Progeria Reunions
The Alabama Rot Research Fund (ARRF) has been set up to fund research to try and better understand Alabama Rot and hopefully identify the underlying cause. Once the cause of the disease is identified, targeted treatment strategies can be considered to try and bring an end to this destructive and distressing condition for both dog and owner. Visit Our Website at www.arrf.co.uk for more information.
The Foundation was set up by Ed Evans in 2006 after he had been diagnosed with a brain tumour.Unfortunately Ed lost his battle against the disease in October 2007 .It's main aim is to raise money for Cancer Research in Wales , Brain Tumour Research and for local worthy causes
It will fund home comforts for patients, carers and families of those suffering from Leukaemia and other blood cancers whilst being treated at The John Radcliffe & Churchill Hospitals, Oxford. It will also fund short break holidays in Spain when appropriate.
The charity supports children with Down's syndrome and/medical conditions and learning difficulties. The Trust has raised funds for the Puffin Appeal and has provided grants and specialist equipment to schools and children since it set up. We aim to bring smiles to the faces of children like Sol.
We support good causes within the east renfrewshire area
Darlinda‘s Charity for Renal Research was the vision of one very special woman... Rita Madhok - who was known professionally as Darlinda - was the astrologer/psychic known to millions of newspaper readers for her weekly column in the Sunday Mail, Scotland‘s biggest-selling newspaper. Through the column, her broadcasting and personal appearances, Darlinda became a household name. When she was hit by a series of health problems - and in particular renal failure - Rita decided to give something back to the hospital and the carers who looked after her through months of ill-health which included renal dialysis and a kidney transplant. That hospital was Glasgow‘s Western Infirmary. The carers and medics were in the hospital‘s prestigious renal unit. For Rita, giving something back meant the launch of a new charity back in 1987 and since then the fundraising has never ceased. Sadly Rita died in 1995 but through her husband Dr Rajan Madhok DL and a handful of friends and supporters the work of the charity continues today. Since 1987 more than £950,000 (total at June, 2012) has been donated to the renal unit - an incredible total for a charity which relies on a small group of committee members supported by some very loyal and generous friends and associates.
Thank you for visiting our profile page on MyDonate.SCCSG helps bring the members of cancer support groups together.
22 September 2012 was our 10th Scenic Fife Coastal Path Sponsored Walk, 6 miles from Inverkeithing to Aberdour. We raised over £7,500 - thanks to you all.Our main nominated charity was Alzheimer Scotland. If you wish to help us raise money for our many deserving causes please donate NOW!
47% of babies born with Downs Syndrome also have congenital heart problems. Downs Heart Group provides parent friendly support and information to their families to enable them to make informed decisions about their childs future. We then support them every step of the way throughout life, being available whenever they need us. Our staff and the majority of our volunteers and trustees have direct links with someone who has Downs Syndrome and heart problems and they use their considerable personal experience to benefit other families. EVERY donation is valuable to us and helps us continue the work we have been doing for over 20 years, supporting a better life for people with Down's Syndrome and being there whenever we are needed.
Each year, NHI raises funds for a local charity. Previous charities include North Highland Cancer Information Support Centre and Caithness Deaf Care. This year (2014) we are actively raising money for local charity Befriending Caithness. For more info on NHI please visit www.north-highlands.co.uk.
Student Heart Health raises money to fight sudden cardiac arrest in young people and to improve the heart health of students. We use the money we raise to provide heart screenings; offer practical advice; promote awareness of heart health risks and the advantages of living a heart healthy life.