Multiple Sclerosis (MS) is a debilitating disease of the Central Nervous System (brain and spinal cord) that is usually diagnosed between the ages of 20 and 40 years.MS is an unpredictable, progressive disease for which there is no known cause or cure. An estimated 2.5 million people throughout the world have Multiple Sclerosis, with 20,000 sufferers Australia-wide and more than 2,000 in South Australia . Three out of four people diagnosed are women and every working day, 5 people in Australia are diagnosed with MS. With MS, the protective sheath around the nerve fibres becomes damaged, interrupting messages from the brain. It also interferes with the brain’s ability to control functions such as sight, mobility and speech. The symptoms of MS vary enormously and may include: Vision and speech difficulties Fatigue Loss of mobility and co-ordination Muscle weakness Incontinence Problems with memory and concentration MS is an unpredictable, progressive disease for which there is no known cause or cure.However, advances in treating and understanding MS are being achieved and research suggests genetic and environmental factors play major roles.
The aim of Make a Difference Foundation WA is to raise significant funds through various projects to make a difference to the lives of those in necessitous circumstances, thereby improving the overall quality of life across various Western Australian communities.
MNDAWA is a registered charity supporting people living with MND, their carers and families. The Association also provides information and education for health professionals. Services include client assessments, referrals to relevant medical services, equipment loans, emotional support, and training. Fundraising and social events are important to raise awareness and funds.
Neuroblastoma Australia is a not for profit organisation run by families and friends affected by neuroblastoma. Neuroblastoma claims more lives of children under the age of 5 than any other cancer. It is an aggressive childhood cancer which almost exclusively affects young children. The average age of diagnosis is just 2 years old. Survival rates are currently around 50% but this is based on just 5 years so the terrible truth is that half of the children diagnosed this year will not be with us in 5 years' time and this needs to change. Neuroblastoma Australia has two objectives - to support the families who have a child diagnosed with neuroblastoma through providing information and emotional support and contacts and to raise awareness and funds for more research. It is clear with more research survival rates can change and the more we do now the more children will be saved in the future. It can take up to 15 years for a discovery made in the laboratory to become part of standard treatment and this involves enormous cost and time and to date neuroblastoma has been a cancer which has not received the right amount of attention and funding so help us change it. All money received from this page will go into neuroblastoma research and go to Children's Cancer Institute. Neuroblastoma Australia is a registered charity but does not yet have DGR status to issue tax deductible receipts. However if you require one we can transfer your donation directly to Children's Cancer Institute and they can provide one but please request at [email protected]. Thank you
Learning Connections is an initiative of The Children's Connection Ltd, to provide treatment for children with learning difficulties, attention disorders, behavioural problems and developmental delay.
Leave No Trace Australia is a national non-profit organisation dedicated to promoting and inspiring responsible outdoor travel and recreation through education, research and partnerships. Leave No Trace builds awareness, appreciation and respect for our natural and cultural heritage.
Bay Babes is a registered non-profit organization based in the Sutherland Shire. Our main aim is to raise awareness amongst local women about breast cancer and the importance of early detection; to provide support to people when diagnosed, and to raise money for our local oncologists to enable them to continue to improve treatment practices and outcomes for women both now, and in future generations
Regional Kids Inc. charity group and is a truely local children’s health charity focused on assisting children and their families within our regional areas suffering the effects of serious childhood disease. All funds raised within our regions area are directed back into the community through our family support and education programs as well as being used to purchase much needed specialized equipment for our local hospitals.
Ryan was working as a Police Officer in Halls Creek, a remote community in WA's far north when he contracted Murray Valley Encephalitis; a rare mosquito borne virus. This virus infected Ryan's brain and carried with it a potentially fatal outcome. But Ryan managed to pull through albeit with a devastating brain injury. The Ryan Marron Foundation provides Ryan with on going rehabilitation and access to the latest brain injury treatment and technology.
The Gallipoli Medical Research Foundation is dedicated to leading the way in championing life changing medical research. Its world renowned research teams strive tirelessly to continually find better ways to prevent, treat and ultimately cure currently incurable diseases afflicting the veteran community and all Australians, such as cancer and liver disease. For example, vital funding has helped to pay for clinical trials thanks to which, new vaccines have been developed and tested, and are helping to save the lives of thousands of patients for whom other treatments had failed. For further information please contact GMRF via our website www.gallipoliresearch.com.au
We offer support for children and adults with hand differences. We provide opportunities for networking and exchange of information. We support research initiatives by specialist surgeons.
Epilepsy affects as many as 2% of Queenslanders. There are more people with epilepsy than with muscular dystrophy, cerebral palsy, Parkinson's disease, motor neurone disease and several others combined. Epilepsy is recognised as the world's most common serious brain disorder (WHO, 1997). While in most cases it is diagnosed during the school years, epilepsy may affect anyone at anytime. Since 1969, Epilepsy Queensland Inc has been dedicated to improving the quality of life of people with epilepsy and their carers/families through advocacy, research, support and information. Considerable effort is put into increasing public awareness and raising community understanding of epilepsy.
Trichothiodystrophy (TTD) is a rare genetic disorder that involves the production of abnormal brittle hair, icthyosis, and physical and developmental disorders. It can also involve ataxia, stunted growth, and skin sensitivity to light and UV rays. TTD is a seriously disabling disorder with a severe skin affliction and serious developmental defects and growth retardation. It can also cause immune deficit cells, premature aging in facial features, cataracts and dental abnormalities, poor weight gain, autistic characteristics such as irritation to high frequency sounds, and repetitive movements and behaviours. It is one of a group of diseases - the others being xeroderma pigmenentusm and cockayne syndrome. It is a rare and recessive disorder, and patients can be characterised by symptoms of sulphur deficient hair, and in about 80% of cases, photosensitivity. There have been no reports of association with skin cancers, but patients have been known to have short life expectancy. Diagnosis is made by studying the hair mounts, and by amino acid analysis which demonstrates decreased high sulphur matrix proteins. The hair is so brittle that once it emerges from the skin and becomes exposed to the environment, the hair breaks and fractures, and so the result is brittle, short and sparse hair. This is why most of the children with TTD have sparse eyebrows and eyelashes. There is currently no treatment for TTD
To provide and promote the best possible care for people living with Motor Neurone Disease. Visit www.mndasa.com.au
The organisation is non-profit and charges only a nominal membership fee to its members. Except for a small annual grant courtesy of the West Australian Government, it is largely reliant on fund raising activities and the public's support for its operating revenue. ADSA is therefore independent of public or private sector interests.
Marnie Clapham was a Year 11 student at Arndell Anglican College, Oakville. She was a very athletic, academic and a high achieving young lady with a fierce determination. Marnie was a keen athlete and represented the school on many occasions in cross country, athletics, swimming, softball and equestrian. She was selected to represent Western Sydney in Softball and made the National Interschool’s team for Dressage in her equestrian pursuits. Marnie was a very popular natural born Leader; she had a way of influencing and engendering cooperation with people of all ages with her mile wide smile, kind heart and mature outlook. Everyone loved Marnie. She listened to you with intent and cared what you said. She genuinely had a deep interest in people, most unusual fora teenager. Marnie was an intelligent, adventurous, caring, active and beautiful young lady. On Friday 31st January 2014 Marnie and her sister Britt went home from School and Marnie decided to do some exercise and it was while she doing some she became dizzy. Her younger sister Britt immediately called Mum and mum called an Ambulance. These decisive actions probably saved Marnie’s life. Marnie was taken to Hawksbury Hospital where they fought tirelessly to save this young 16 year old girls life. Once she was stable enough they flew her by Helicopter to Westmead Hospital (adult area as she is considered transitional age 16 - 21) where she was diagnosed with an arteriovenous malformation AVM. The AVM caused Marnie to suffer a very serious brain hemorrhage Marnie was place in an induced coma and shortly operated on to insert several ventricular drains to allow the blood to drain from the brain. Within days she had to face a second operation to remove a piece bone from her skull to accommodate increased swelling. Additional procedures followed including a tracheotomy to allow her to breath, the insertion of a feeding tube directly into Marnie’s stomach and a brain and stomach shunt to drain fluid. The traumatic events that unfolded and the possibility that this was going to be a very long recovery for Marnie spurred a group of Marnie’s friends mums to setup a ‘Marnie Clapham Fund’ (MCF) in order to conduct an appeal to raise much needed funds. A bank account and ABN were obtained. The fund since has been granted a Charitable status. Marnie's rehabilitation and future care will place enormous financial pressure on the family. We hope to ease this burden for the family with the funds we raise and contribute to any future living aids and care Marnie will need in the future.
Founded by Duncan Chessell and Greg Perks in 2012, the purpose of the Himalayan Children’s Education Foundation (HCEF) is to raise funds to support projects that educate the children of Sherpas who live in remote locations of Nepal.
The Rett Syndrome Association of Australia (RSAA) was established in 1989 in response to the needs of individuals with Rett syndrome and their families, in order to develop an understanding and awareness of the disorder, and further the advancement of research, therapy and care.
Regional Kids Inc. charity group and is a truely local children’s health charity focused on assisting children and their families within our regional areas suffering the effects of serious childhood disease. All funds raised within our regions area are directed back into the community through our family support and education programs as well as being used to purchase much needed specialized equipment for our local hospitals.
Cancer Council Tasmania is a not- for-profit organisation that works to minimise the incidence and impact of cancer on all Tasmanians.
The Prostate Cancer Institute (PCI) has been established to provide a comprehensive treatment facility providing every treatment option under the one roof as well as a clinical research facility. The PCI is located at St George Cancer Care Centre, St George Hospital, a facility already noted as a leader in cancer treatment.
The Loyal Foundation was set up by Bell Partners in 2009 with the sole goal of raising much needed funds for charities such as the Humpty Dumpty Foundation that provides much needed childrens medical equipment to Australian hospitals. Since its inception, the Loyal Foundation has raised over $3 million and the Humpty Dumpty Foundation is our main patron charity again this year as we aim to raise over a million dollars. Our new boat Loyal 100 and its campaign for the 2013 Rolex Sydney Hobart yacht race was officially launched by The Hon. Tony Abbott, MP Prime Minister of Australia, on Wednesday 6th November, 2013. In our previous campaign in 2011, Loyal won line honours and in the process helped raise donations for the Loyal Foundation via gala events associated with the campaign and the involvement of high profile Australians in the sporting and entertainment fields being on board the boat. Bell Partners CEO and Loyal Foundation founder Anthony Bell believes that Loyal 100 is one of the fastest boats in the world and is sure to challenge Wild Oats for line honours again this year. The Loyal Foundation works on the principle that 100 cents in every dollar donated is distributed to approved charities with no administrative costs whatsoever.
Hearts of Hope Australia Limited provides non-medical support to all families with a child born with a heart condition that cannot be cured through medical intervention. This includes, but is not limited to, single ventricle anomalies such as Hypoplastic Left Heart Syndrome.
Haemophilia Foundation New South Wales is a not for profit health promotion charity that provides advocacy, education, and support for people with inherited bleeding disorders,and their families within New South Wales.